What is the HEP Study?

 

The Human Epilepsy Project is a group of registry-based studies for people living with epilepsy. 

The Human Epilepsy Project is jointly supported by the Epilepsy Foundation and the Epilepsy Study Consortium, both nonprofit patient and science advocacy organizations. Scientists, clinicians and families have joined together to collect information about people with epilepsy to help better understand the challenges of living with seizures, to learn how people respond to different treatments and to identify markers (or ways) for improving treatment success. This information is critical to accelerate the development of new treatments, prevention strategies and cures for the many types of epilepsy. 

For questions related to the HEP2 study, please visit our websites or call
www.HEPStudy.org

Epilepsy & Seizures
24/7 Helpline
1-800-332-1000
en Español 1-866-748-8008
epilepsy.com/helpline

Download some more helpful information :

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Why is HEP important?

The HEP Study for Focal Epilepsy relies on people with epilepsy to become part of the team - helping doctors and scientists unlock the mysteries of epilepsy. 

Participants work with doctors to closely monitor their epilepsy, including careful tracking of their symptoms and medicines using My Seizure Diary. The doctors carefully study each person’s epilepsy, and look at blood proteins, DNA, treatments, side effects, and questionnaires about mental function and mood. 

200 people with epilepsy like yours will participate in HEP2. Working together, we will discover clues to help us understand how people become seizure- free and who will respond to medicines. This knowledge will help people who get epilepsy in the future have more answers instead of questions. 


What is the HEP2 Study?

The HEP2 Study is a research project to better understand what happens over time in people with focal seizures that don’t respond to current treatment.

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What do I need to do if I join the study? 

  • Keep track of your seizures and medications using My Seizure Diary
  • Answer questions about your medical history and your seizures
  • Visit the study team three times over two years for health exams and blood tests.
  • Complete surveys about your quality of life, mood, mental functioning, general health, and healthcare visits or tests. 

 

Participants receive compensation for each study visit.


Who is eligible to participate?

If you answer yes to the two questions below, you may be eligible to participate!

  • Have you been diagnosed with focal epilepsy, and have four or more seizures each month?
  • Have you tried four or more seizure medicines but still have seizures?

Contact the HEP team listed above for more information!

We have participating clinical centers in California, Minnesota, New York, Connecticut, Pennsylvania, and Tennessee.

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HEP is sponsored by:

 
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